Friday, June 3, 2011

Friday June 3rd Update

Let’s start this post with a little levity.   This falls in the category of “there is nothing left to do but laugh”.  
For those of you not reading this in central Kentucky I need to let you know that we went from a very wet cool spring to the middle of hot and humid in about a minute and a half.  To my family in south Texas and Florida it may not sound like a big deal to you, but it has been August like around here.  
Late Wednesday afternoon we noticed that our air conditioning was not working.  Neighbors were here in a heartbeat with extra fans and Custom Air has been fabulous.  Monty came out yesterday afternoon, declared it a dead compressor, called Lexington late in the day yesterday and secured one, Dr. Marti exchanged her surgical gown for a delivery hat, picked up the compressor this morning and it has been installed and we are cooling again.  More thanks, this time they go out to my neighbors and Custom Air/Monty, Frank and Chris.  
A belated word about Marti; She is the one that has gotten me this far and I am sure will get me all the way down the road.  She is part doctor, therapist, realist, humorist (let’s not forget the picture she took right after they marked me surgery or the fact she called me out when I said I may not be able to walk 5 mile with her) and apparently delivery driver.  Marti is the one who first noticed some of my changes and insisted on telling everyone she knew.  More about Martha Jane in post to come.
Apparently I have not said exactly what I have but it is a Glioblastoma multiforme.  I stand by “nasty” from an earlier post.  The other news is that my uncle on my Mom’s side died from the same thing 11 years ago and I found out today my aunt on my Dad’s side death certfiicate indicated she died from something called an “infiltrating glioma” in 1946.  Same monster by a different name?  I don’t know yet.
Yesterday Marti and I were welcomed by Pat and David Liebschutz who are blazing this trail ahead of us.  Marti and I are on step 3 of the journey while the Liebschutz are miles ahead.  Nonetheless it was somewhat calming to know we have a tremendous resource that will answer questions ranging from treatment types and side effects to the best place to have lunch in Raleigh/Durham.  What a great example to try and emulate.
With nothing new on the horizon the blog is taking a couple of days off.  I hope everyone has a great weekend.  Once more, thank you for caring.
 

2 comments:

  1. No you can not take a couple days off! I and we are clinging to every message you post. It is very important to us even if you think it isn't! I tonight thanked the Good Lord it is 2 weeks past that not so good day. We are with you every step of the way. It is not about you but about those of us who are with you!!! We need to know Dr. Martha is doing the right thing!
    Love you both (to Marti To the Moon and Back)

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  2. Well, I don't know how you'll ever say enough about Marti. She is truly amazing. We all know that! And now delivery person. WOW.

    I'm so glad you got to meet with the Liebschutzes. What a wonderful idea that was!

    Have a good week-end. You have a busy week ahead. I will be having lunch at The Barn today.

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